Three hundred and sixty-two chapters, the pitiful Guan Kou
On the bus to the hotel, Chen Chang'an quietly leaned in the back seat and closed his eyes to rest.
Since Guan Kou left the hospital, his mood has been very low.
After a brief encounter with the young mother in the elevator, when he returned to the car, Guan Kou went online to check the specific situation of the disease of comprehensive developmental delay.
But the more she looked, the cooler her heart became.
Especially the anonymous confession of a mother suffering from comprehensive developmental delay, Guan Kou felt a little depressed.
“My pregnancy is perfect, I’m super cautious, taking prenatal vitamins every day, never drinking alcohol, if someone smokes near me, I’ll walk away, but after ten months of pregnancy, I was greeted by a bolt from the blue.
My child is a severe comprehensive developmental delay!
She is six years old this year, but she has just learned to control her urine and defecation independently.
She often drools, sticks out her tongue, sleeps peacefully all day long, is not lively, has a dull expression and has no expression on her face.
She can't speak, but fortunately she can understand some simple instructions.
She screamed intermittently for several hours every day, and when she didn't scream, she would just be dazed.
She doesn't communicate with people like a normal child, and treats anyone else like inanimate objects, without attachment and emotion.
Her interaction with me was limited to pulling me to the kitchen to get her food, or handing me her toys to fix it.
I don't think I'm a mom, I think I'm a caregiver.
I got almost no happiness in taking care of her, I was always tired, exhausted, and tired to deal with it all.
Raising her is different from raising an ordinary child.
You can raise a child into a decent adult. You teach them politeness, respect, kindness, teachers teach them knowledge and values. They can make friends when they grow up, and they can get good opportunities in school, and they will have a fulfilling life in the future.
And all of this is a luxury for me. I am raising a child who will never grow up, always raising a three-year-old child, and raising it for the rest of my life.
For me, I just let her live, so that she can eat, wear warm clothes, be safe and happy, and have spent all my energy and ability.
I feel like I've been taking care of a baby for the past six years, and her progress is very slow and very small.
How I wish that when she was twenty years old, she could have a little simple communication with me, even if it was just a few conversations, or she could concentrate on watching a movie, playing with a small toy, or even a children's book.
But the only connection we can make is that she is in a daze. I snuggled up on the sofa with her and lay quietly for a while.
When I saw a child who was much younger than her able to have a long conversation with her parents, I was very jealous.
I see kids tell their parents what they want to do, what they want to eat, talk about interesting things they encounter in their day, or something else.
If she could have such a simple communication with me, I could not imagine how easy and unhealthy my life would have been.
However, the truth is that I took her to the playground, and the other children asked her why she didn't talk and didn't talk to them.
We went shopping together, and she would yell and be irritated, so we had to give up shopping.
We went out for dinner together, but she couldn't sit still and always wanted to run around the hall, touching and smashing it.
The older she grows and taller she gets, it becomes more and more difficult to manage.
And she often beat herself, and sometimes she would apply her stool on her body.
When she is unhappy, she will knock her head against all objects in front of her, whether it is walls or furniture, and even this situation will happen many times a day.
Even if I keep staring at her, she often bumps into the wall when I don’t pay attention, and it’s even more common to break the skin.
I don't know how I can control her and ensure her safety when she reaches puberty and is the same height as me. I don't even dare to think about this issue.
I never thought my husband and I would have such a special child, neither of us had any family history, and I took good care of myself when I was pregnant.
My husband and I waited until our financial stability and after we were ready to welcome the child, we planned to have it.
We did nothing wrong, but God teased me like this.
When I was pregnant, we had a lot of pregnancy tests, but there were no problems during the pregnancy test.
Because of this comprehensive developmental delay, it cannot be detected at all in the embryonic stage.
If I knew my life would be like this, I wouldn't have given birth to her!
I don’t dare to have another child now, and my husband has decided that we will not have another child in the future.
My husband and I were under heavy pressure and were always nervous. We couldn't stop her from self-harm every time, and we couldn't stop her from making herself a concussion.
We have long-term lack of sleep, we have no private life, our brains are suffering from anxiety and fear every day, and we are already on the verge of collapse.
But even so, I still love her. I will not send her to a disabled child welfare home or any caring institution. I am worried that she will be neglected and abused there.
When she becomes an adult, maybe we will take her to a small countryside village and wait for her to spend the rest of her life until she dies.
I hate this kind of life, but I have to live this kind of life..."
When Guan Kou finished reading this heavy and chilling confession, tears rolled in his eyes.
Although she has never had any experience in having children, as a woman, she is very able to empathize with the mother who wrote this confession.
No matter which family stall is at this kind of thing, it will definitely be a frustrating nightmare.
Guan Kou turned his head to look at Chen Changan with tears in his eyes, and said to Chen Changan who was resting with his eyes closed, "Mr. Chen, is there really no way to treat the child with a comprehensive developmental delay that I met in the elevator just now?"
Chen Changan was awakened by Guan Kou's even more snorted crying voice in a daze. Seeing the tears rolling in Guan Kou's eyes and the phone she was holding tightly, he probably understood what was going on in his heart.
He pondered for a moment and organized the language.
"It's difficult. This kind of intellectual defect has many causes, such as genetic mutations, infections, poisoning, head injuries, cranial malformations or endocrine abnormalities, which may cause the fetus or infants to not develop normally or develop incompletely."
"At present, only about 50% of children with intellectual disabilities can identify the cause, and 30% of them are caused by abnormal genetic factors."
"Most of the more severe cases of moderate and severe intellectual disabilities are caused by single-gene or multi-gene abnormalities and congenital metabolic defect diseases."
"At present, there are no special drug treatments in this field, and we can generally rely on interventional educational support and rehabilitation training."
"Some infants with intellectual developmental delays will get better and better after early intervention, and slowly catch up with the development level of their children of the same age, but there are also examples of poor results and development into intellectual disabilities."
"Basically, as long as the child develops into mental retardation, there is no effective treatment method to restore normal intelligence."
Guan Kou looked at Chen Changan with tears in tears, his mouth bent slightly, and he said unwillingly: "Mr. Chen, do you have no choice?"
"This..." Chen Changan looked at Guan Kou's pitiful expression and fell into deep thought.
Chapter completed!